We’re thrilled to announce that the app is available for both iOS and Android. The (35,000+) locations we’ve added so far were suggested by #lowprotein community members or provided by participating brands, but the most important part of GO LOW PRO is YOU! Adding your local favorites, reviews of restaurants…
Ongoing Clinical Trial of a Urine Test for At-Home Blood Phe Monitoring Robert A. Latour, Ph.D.; McQueen-Quattlebaum Professor Department of Bioengineering; Clemson University, Clemson, SC Researchers at Clemson University have been working over the past five years on the development of a urine test as an at-home monitoring method for…
The Partnership for PKU has been working with ALDI to try to find a way to get more products into How Much Phe for more than a year. Unfortunately, we haven’t been able to make progress, despite best efforts by both parties. Please see the statement from ALDI below regarding…
Back-to-School means back to the cafeteria. For some students, this is no problem: they eat what they eat and they don’t really care that their lunch looks different than other kids’ lunches. For others, anxieties about being different, fitting in, and having a special diet can make the cafeteria an…
Question: I have noticed that things in the phe books list many things with lots of sugars and sodium have the lowest phe in them and that a lot of recipes contain lots of sugary type and sodium type ingredients. How can all that be healthy for your body. I am…
National PKU News celebrates its 30th anniversary this month, April 2019. To mark the occasion, PKU News’ intern, Gisele Miler, who is Dietetic Intern and Masters student in Nutrition at Auburn University, interviewed our founder, Virginia Schuett, about the history and evolution of the organization. What follows is an edited…
Expecting Health, a non-profit organization focused on engaging families and health professionals in pregnancy and newborn health is conducting a survey on family needs for newborn screening education. The goal of this survey is to learn about families’ needs and priorities around newborn screening information. The survey will inform development…
Yes! According to the World Health Organization (WHO) Blood Donor Selection Guidelines and the American Red Cross (800-Red-Cross) PKU is not an exclusion for blood donation. PKU is an inherited disorder and it cannot be transmitted by a blood transfusion. Recipients of blood from PKU donors will be able to…
We all know managing the PKU diet takes a lot of planning, and sometimes it’s just not possible to be THAT prepared. Or maybe you’re traveling and need a few low-protein staples, stayed later than you expected at work, and need to refuel while staying within your allowance. Maybe you’re…
We know you’ve got a story to tell! Mark Korson, MD, Director of Education at VMP Genetics and Jacob Athoe, a student of the Boston University Genetic Counseling Program, would like to invite you to join them as they shape a registry of PKU patients and their families, and their first-hand stories about…
