Board of Directors

Virginia Schuett
Founding Editor & Director;  Member, Board of Directors
Virginia Schuett has been involved with PKU since the early days of newborn screening, beginning her long career in 1972 after receiving her Master’s Degree in Nutrition from the University of California, Davis and a dietetic internship in Madison, Wisconsin. For 16 years she was nutritionist for the PKU clinic in Madison, while also serving as a project nutritionist for the most comprehensive study of PKU ever undertaken, the National Collaborative Study of Children Treated for PKU (a multi-clinic longitudinal study). She left the clinic in 1988 to move to Seattle, Washington and started National PKU News in 1989 in order to produce a much-needed national newsletter. She was the editor for 78 issues of the newsletter over 26 years, a publication that had many subscribers in the US and Canada and also had subscribers from dozens of other countries. She is the author of numerous books, including the “classic” Low Protein Cookery for PKU (3 editions, the first in 1977), 4 editions of the Low Protein Food List for PKU, and Apples to Zucchini: A Collection of Favorite Low Protein Recipes. She is the author or co-author of numerous scientific articles and other education materials related to PKU treatment. In 2012 she received a “PKU Hero” award from the National PKU Alliance in recognition of her many contributions to PKU treatment over the past 4 decades. After stopping the newsletter in February 2015, she is “semi-retired” but continues to oversee the nutritional program for National PKU News.

Jeb Haber
President, Board of Directors
Jeb is the father of a young child with Classical PKU.  He has volunteered his time with National PKU News since 2010 and joined the board in 2012. His primary focus with PKU News has been on long term planning, program strategy, amino acid testing and technology.

Adrian Mays
Secretary and Treasurer, Board of Directors
Adrian has extensive experience in finance at Starbucks and at his current employer, Microsoft. He brings to the board an expertise in financial management and forecasting. The father of a young child with MSUD,  Adrian served as a Staff Sargeant in the U.S. Air Force.

Ameya Bhatawdekar
Member, Board of Directors
Ameya is passionate about building products that help people by advancing AI. He has shipped many internet-scale intelligent systems in products like Windows, Office, IE and Edge, and Facebook family of apps and platforms. Currently, he works at Microsoft to build AI powered features in Office that help people deliver their best work. Before, he worked at Facebook AI to advance the state of art for AI to protect people from abuse and harm, and at Microsoft to build AI powered safety products that protect people from socially engineered attacks on the Internet.

Jerry Elkins, II
Member, Board of Directors
is a partner with KPMG LLP, one of the world’s largest accounting, tax and advisory firms.  He has with deep experience serving large multi-national clients, primarily focused on public company (SEC) filings, merger and integration activities, divestitures, financial due diligence and finance transformation projects,   He is also the father of 3 kids, including Hudson who has PKU. He and his wife Jill have been instrumental in supporting NPKUA research efforts and fundraising through their annual golf event, the Creighton Farms Invitational, hosted by Jack Nicklaus.  Jerry is also the President of the Board of Directors of the National PKU Alliance. 

Jacqueline Kellish, MA, PhD
Member, Board of Directors
Jackie, who has PKU, was a Guthrie-Koch PKU Major Scholarship Award winner in 2006. She has a Masters in Political Science and History and a PhD in English, and is the Public Engagement Coordinator at the National Humanities Center. She’ll be heading up the relaunch of the Guthrie-Koch Scholarship Program and focusing on nonprofit strategic development as part of her role on our board. 

Michelle M Hobbs, RD
Member, Board of Directors
Michelle has a lifetime of experience managing the PKU diet as a PKU adult. Before joining PKU News, she worked as a metabolic dietitian and has extensive experience in bariatrics with a focus on adult and pediatric weight management. Having had two successful pregnancies, Michelle is a volunteer with the NPKUA Maternal Mentor Program.

Kristen Vanags
Member, Board of Directors
Kristen is Vice-President of Georgia PKU Connect, vital leader on issues including the Medical Nutrition Equity Act and Newborn Screening, and a strong advocate for all Georgia residents. SHe brings strong skills in advocacy and a perspective grounded in the local-level experiences of the IEM Community.

Brenda Winiarski
Member, Board of Directors
Brenda was a speech-language pathologist with a focus on feeding issues when her first child was born in 2000. When her daughter was diagnosed with PKU at six days old, Brenda promised her that PKU would never get in the way of her enjoyment of food. Brenda attended the Chef Training Program at the Natural Gourmet Institute for Health and Culinary Art in New York in order to fulfill that promise. She developed delicious PKU friendly meals and launched her low protein culinary website Cook for Love  in 2009. Brenda joined the Board in 2017 so she and PKU News could pool resources to achieve their common goals.