Sarah is the parent of two daughters, one with PKU born in 2013. She has a degree in English from Wesleyan University and studied nonprofit management as a Jane Addams Fellow at the Indiana University Center on Philanthropy. Sarah has worked in international human rights and national political advocacy, and created her first web site in 1997 for a small opposition newspaper in Cameroon. She has continued to leverage technology to support advocacy work ever since, eventually founding her own web development firm. When her daughter was diagnosed with PKU, the development of HowMuchPhe.org was inevitable: she reached out to Virginia Schuett to collaborate, and obtained a grant to fund the app, which launched in July 2014. She assumed the directorship of PKU News when Virginia Schuett retired in 2015. She is currently driving the priorities of PKU News to focus on improving patient care and health across all IEM through a whole-health approach aided by technology.
Jennifer Beazer, RD
Jennifer was a dietitian at St. Luke’s Health System in Boise Idaho from 2005-2019, specializing in metabolics, cystic fibrosis, and the ketogenic diet. She has served in both the Meridian and Boise NICU, peds/PICU, peds onc, cardiology, nephrology, GI, trach and vent, and other sub-specialty areas.
Chief Technology Officer
Michael was an Engineering Manager at Microsoft for nearly 20 years, and has a deep background in cloud and system architecture with a focus on operational reliability. He has helped build, and managed, numerous services at large scale. More than once, he’s been accused of breaking the entire internet, which he says is only hearsay. Attached to the inborn errors and metabolism community through close friendship, he couldn’t be more excited to be part of PKU News and the mission to continue building new and improved services that benefit the whole health of each person.
Community Engagement Coordinator
Nikki has a background in health education and is a certified radiation therapist. She is the parent of two children, including one with Argininosuccinic Acidemia (ASA) a urea cycle disorder. Nikki found a home within the Cook for Love community when her daughter was born, and has been a consistent user and supporter of How Much Phe and GO LOW PRO as well. We’re thrilled to have her talents and energy as part of our team. You can reach her at [email protected].