Articles by Sarah Chamberlin

PKU News Presents Data on the Simplified Diet at NORD Summit, 2020

PKU News was pleased to present a research poster in the category of Innovative Research at the 2020 NORD Rare Diseases and Orphan Products Breakthrough Summit. The poster examines the use of the Simplified Diet for trackers on How Much Phe, analyzing the population of users and the nutritional and…


Back to School on a Low-Protein Diet

Starting school can create a lot of anxiety, not just for students, but also for parents of children who require a low protein diet. We may ask ourselves “how will they get their formula in?”, “how will we manage the low protein diet?”, “My child has learning issues related to…



Patrick Dent, Columbia, IL

Patrick says “PKU taught me a sense of discipline at an early age. Because of this, I have learned to juggle a very busy schedule between school, sports, music, theatre, church, and my involvement in the PKU community,” and he has been able to excel in so many areas. His…


Alexandria Hall, Irmo, SC

Alexandria has a deeply-rooted passion for genetics and biology that she attributes to her PKU: it spurred her interest in the medical field and pushed her to excel. Throughout her upbrining, Alexandria faced many uncertainties, but felt that her PKU was a constant — while she at times struggled to…


Gabriella Perko, Vista, CA

Gabriella Perko discovered her love of history and science during the years she was homeschooled in grades 5-8, partially so that her family could retain close control on her PKU diet for Gabriella and her sister, who also has PKU (Hyperphe).  She plans to study Anthropology/Archaeology at the University of San…


Garrett Ros, Van Vleck, TX

Garrett Ros’ family was well aware of PKU before he was born: His uncle was diagnosed with PKU at 5 months old, and taken off diet at age 5. He lives with the debilitating affects of PKU even today. This knowledge meant that Garrett always understood the importance of his…


Joshua Eckerman, Wisconsin Dells, WI

Joshua is the oldest of four children and has a longstanding commitment to music, and has always understood that academic achievement was important to success. While performing music builds his confidence, competitive tennis builds his endurance and supports a healthy lifestyle. As a member of the National Honor Society and…


Zoe Evans, Monroe, LA

Zoe Ophelia Evans will attend Louisiana Tech University in the fall of 2020. She is expected to major in Finance and minor in Spanish. In high school, Zoe was a 3-year member of the National Honors Society where she became Vice President her senior year. During her senior year Zoe…


Carter Talbert, Ponte Vedro Beach, FL

Carter Talbert has worked diligently to ensure his own success in college. He is working toward a degree in accounting and certification as a CPA. Carter was a member of Key club and spent time teaching elderly folks about modern technology. He has worked to maintain his diet, with the…