Family Camp is open to anyone (of any age!) with an inborn error of protein metabolism, their friends, family, and caregivers! We have participants with PKU, MSUD, Tyrosinemia, HCU and Urea Cycle Disorders. Camp was founded by PKU Northwest, but has always been open to all IEM!
- The cost for in-person camp, Thursday-Sunday, including all means (high or low-protein) is $300 per camper.
- Virtual camp (including a tshirt, cooking kit & many other goodies) is $20 per camper
Nope, this is FAMILY CAMP! For in-person camp, there must be at least one adult in each party attending camp. This is a great place for kids, young adults, adults, and entire families to be with their IEM community. For virtual camp, a child can technically participate alone, but it’s more fun together. You’ll need to register each camper for virtual camp if they will a) log into camp using a separate device or b) want to receive a camp box with tshirt, cooking kit etc.
Absolutely. Many rooms are on the bottom floor of the cabins and at registration you can request a pack n play. Rooms hold 9-12, so if you are coming with friends or a big family group, you can all room together! Depending on the number of campers, families may bunk together; we will do our best to put families with similar-age campers together. People will understand if there is night waking or you need to be away for nap time. We’ve all been there and everyone is welcome!
No. COVID-19 vaccine and boosters are not required at this time, but highly encouraged. The current health policy is as follows: Family Camp is for anyone affected by any inborn errors of metabolism (IEM) and those who support them. Some members of the IEM community are more vulnerable to infectious conditions than others, and we strive to maintain an environment that allows everyone to feel safe and protected. We ask all campers to cooperate in taking steps to reduce the transmission of infectious disease, and to that end have the following policy regarding infectious conditions. This policy may evolve as conditions change.
- The best strategy is the most obvious—frequent hand washing with warm, soapy water; covering your mouth whenever you sneeze or cough; and discarding used tissues in wastebaskets.
- We will have masks available as desired, sanitizing stations, and space to isolate if someone presents with an illness while at camp.
- We ask that you not attend Family Camp in person if you or another member of your group has been ill in the days leading up to camp. Examples include fever, vomiting, diarrhea, cough, sore throat, runny or stuffy nose, body aches, headache, chills and fatigue. Currently, the Centers for Disease Control and Prevention recommends that people with any infectious illness remain at home until at least 24 hours after they are free of fever (99.9°F or 37.7°C) or signs of a fever without the use of fever-reducing medications.
- If you or a member of your group feels ill during your stay at camp please present to our medical staff immediately.
We thank you for your cooperation and care for all the members of our community.
It is lodge style housing in which each cabin has a large bunk room with a private bath. ADA rooms are available and walkways are paved. Rooms hold 9-12, so if you are coming with friends or a big family group, you can all room together! See this picture. Meals are communal.
You’ll receive a kit in the mail that contains pre-measured ingredients so the whole family can follow along! The demo video may be pre-recorded, but Brenda will be there to guide you and chat with you throughout!