Articles by Sarah Chamberlin

Cooked Versus Raw

By Cook For Love’s BRENDA WINIARSKI As we all know, calculating the phe & protein in your food is a pain. At first, it’s relatively easy: look up a food, weigh or measure it, and calculate the phe. But once you start cooking–for a child with PKU or for yourself —…

Recounting PKU: A Living History Project for Adults with PKU

PKU News is pleased to announce the founding of RECOUNTING PKU, a living history project for adults with PKU. We invite anyone 18 and older with PKU to join us and share their experiences—the good, the bad, and the ugly—of living with PKU. PKU is strongly associated with children for several reasons: newborn…

Brenda’s Guide to Low-Protein Easter Candy

Easter is around the corner.  The traditional Easter candy is not always suitable when you are on a low protein diet, so how do you make it special for your loved one?  A little toy and a book are a great place to start when filling the basket. Easter themed…

So Delicious Dairy Free Joins the Partnership for PKU!

We are pleased to announce that after several years of lobbying by PKU News and countless community members, So Delicious Dairy Free has joined the Partnership for PKU as a premier partner. What Does That Mean? So Delicious is in the process of providing PKU News with the amino-acid-verified phe and protein values for its entire…

What is the Simplified Diet?

There has been a fair amount of online discussion recently about the Simplified Diet—What exactly is it? How does it work?—and so we thought was important to provide some information. First and foremost, the Simplified Diet is not something you can undertake on your own. If you’re interested in it,…

Medical Nutrition Equity Act under Committee Consideration

Is your state highlighted on this map? If so, it’s time to take action. The Medical Nutrition Equity Act (S. 1194 and HR. 2587) is under consideration by several key Congressional committees. These committees are determined based on what parts of the government would be affected by the bill. Co-Sponsor…

Being Thankful with PKU

Michelle Maguire Hobbs is PKU News’ Staff Dietitian. She’s also an adult with PKU. In honor of Thanksgiving, she’s written about why she’s thankful. This past weekend I was fortunate to be asked to speak about estimating phe content from food labels and the work of How Much Phe at…

Low-Protein Pumpkin Lasagna

Makes 6 Servings Author: Original: Taste of Home. Modified to make Low Protein by Molly Smith-McDevitt Prep Time: 25 Minutes Total time:  55 Minutes + Standing Ingredients: 145gm Pound Sliced Fresh Mushrooms 250gm Small Onion, Chopped 1/2 Teaspoon Salt 2 Teaspoons Olive Oil 417gm (1 -15 ounce Can) Solid-Pack Pumpkin 135gm…