Announcing the new ADVOCACY TOOL hosted by HowMuchPhe.org and open to anyone who cares about issues affecting the PKU & Allied Disorder Communities (no subscription necessary). Visit https://HowMuchPhe.org/advocacy, select your state and get ready to take action. FIRST UP: The Medical Nutrition Equity Act. National PKU Alliance hosted 40+ advocates for more than 100 meetings with senators, congressional reps, and their staff.
Now is your chance to add your voice to help guarantee universal insurance coverage in the United States (private, public, self-funded, medicare plans) for formula and low protein modified foods for PKU and other inborn errors of metabolism.
With your help, we can make coverage for Medical Foods a reality!