PKU News and the National PKU Alliance are pleased to release a video produced by PKU Advocate Kevin Alexander that highlights the reasons we need to pass the Medical Nutrition Equity Act. Please share this video and message with your friends, family, and most importantly, your legislators.
If you or a family member uses medical nutrition, please share your story at https://equity4.us. The Coalition of Patients & Providers for Medical Nutrition Equity is bringing your stories directly to your legislators.
Background: PKU is diagnosed through Newborn Screening, and although all babies in the United States have been screened at birth for over 50 years, coverage for medically necessary treatment is often denied and unreliable. Without early and lifelong treatment, PKU causes irreversible intellectual and physical disability. Congress has an opportunity to prevent these devastating results by passing the Medical Nutrition Equity Act, a bi-partisan bill waiting for action in the U.S. Senate and House of Representatives.
Shorter version of the video:
This version is great for social media. Please share this version with Members of Congress and all your networks (click on the paper airplane icon).
Share this longer version (7+ minutes) for those willing to take a bit more time to understand the issues (click on the paper airplane icon).