Resources

Give in Kind – Support New PKU Families

Give In Kind is a web site designed to help support those going through difficult times. And learning that a newborn baby has PKU certainly qualifies. On top of all the other stresses of having a newborn, families with a new PKU diagnosis need new tools, information, and additional support….

Foods with Phe

Late-Treated Adult: Katie

Diet Intervention Guidelines for Adults with Untreated PKU

Applying for Social Security with Phenylketonuria

Drug Products Containing Phenylalanine

At the Table with Family and Making Family Meals Manageable

Off-Diet Young Adults with PKU: Lives in Danger

Study Shows Long-Term Beneficial Effects of the PKU Diet, Even for Late-Diagnosed Persons

Collaborative Study Shows Why Adults Need to Remain on the PKU Diet

By Dr. Richard Koch, Los Angeles Children’s Hospital From the Fall 2003 issue of National PKU News The year 1967 marked the beginning of a very important longitudinal study: The Collaborative Study of Children Treated for Phenylketonuria (PKUCS). With a beginning study group of 211 children from 15 clinics nationwide,…

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