There has been a fair amount of online discussion recently about the Simplified Diet—What exactly is it? How does it work?—and so we thought was important to provide some information. First and foremost, the Simplified Diet is not something you can undertake on your own. If you’re interested in it,…
Is your state highlighted on this map? If so, it’s time to take action. The Medical Nutrition Equity Act (S. 1194 and HR. 2587) is under consideration by several key Congressional committees. These committees are determined based on what parts of the government would be affected by the bill. Co-Sponsor…
Michelle Maguire Hobbs is PKU News’ Staff Dietitian. She’s also an adult with PKU. In honor of Thanksgiving, she’s written about why she’s thankful. This past weekend I was fortunate to be asked to speak about estimating phe content from food labels and the work of How Much Phe at…
Makes 6 Servings Author: Original: Taste of Home. Modified to make Low Protein by Molly Smith-McDevitt Prep Time: 25 Minutes Total time: 55 Minutes + Standing Ingredients: 145gm Pound Sliced Fresh Mushrooms 250gm Small Onion, Chopped 1/2 Teaspoon Salt 2 Teaspoons Olive Oil 417gm (1 -15 ounce Can) Solid-Pack Pumpkin 135gm…
Big News from National PKU News and Cook for Love: We’re joining forces to bring you a new, revolutionized version of Cook For Love, powered by HowMuchPhe.org! When National PKU News launched HowMuchPhe.org three years ago, we transformed a staple of life with PKU: The Low Protein Food List for…
Announcing the new ADVOCACY TOOL hosted by HowMuchPhe.org and open to anyone who cares about issues affecting the PKU & Allied Disorder Communities (no subscription necessary). Visit https://HowMuchPhe.org/advocacy, select your state and get ready to take action. FIRST UP: The Medical Nutrition Equity Act. National PKU Alliance hosted 40+ advocates for more than…
June 28, 2016 is the 100th Anniversary of the birth of Dr. Robert Guthrie, Newborn Screening Pioneer. Read more about his work and legacy here.
National PKU News announced the publication on HowMuchPhe.org of the phe & protein values for the following foods: Chao Creamy Original Cheese by Field Roast Almond Dream Vanilla Yogurt Lotus Biscoff Sensible Portions Garden Veggie Straws The results also provided an updated (and slightly lower) phe value for Glutino Pretzel…
National PKU News is delighted announce the following winners of this year’s Guthrie-Koch Scholarship for PKU. Scholarship Winners Jeffrey Larson Sydney Barba Merit Award Winners Jennifer Paul Joshua Ranney Andrea Schreck Benjamin Gauger Full details on the scholarship can be found here.