News

Disaster Preparedness and PKU

As Hurricane Florence approaches the East Coast of the U.S., and we remember the events of September 11, 2001, it’s worth reviewing how to be prepared for crisis situations so that we can manage PKU or other disorders at these times. While we’re trying to keep our families safe, and…


Back to School With PKU!

August means back to school! Fresh new pencils, markers, and paper! For parents of kids with PKU there is also worry: Will the school staff understand? Will they help my child adhere to the diet? Will the other kids make fun of my child for being different? Individuals with PKU…


Cook for Love Packs the House at the NPKUA Conference

Brenda Winiarski, founder and chef of Cook For Love, and Michelle Hobbs, National PKU News board member, had more than 80 people at their Phlexi-Phe Meal Planning session at the NPKUA conference on July 7th. Participants got to see (and taste!) several delicious Cook For Love recipes, including: Kentucky Fried…


A new video highlights the need for Medical Nutrition Coverage for PKU

PKU News and the National PKU Alliance are pleased to release a video produced by PKU Advocate Kevin Alexander that highlights the reasons we need to pass the Medical Nutrition Equity Act. Please share this video and message with your friends, family, and most importantly, your legislators. If you or…



ALDI’s Little Journey Joins the Partnership For PKU!

Thanks to the efforts of community members (just like you!) ALDI, one of the fastest-growing retailers in the U.S., has joined the Partnership for PKU, providing us with values for their entire Little Journey baby food line, including formulas. This wouldn’t have happened without a HowMuchPhe.org user who took the initiative to reach…


Cooked Versus Raw

By Cook For Love’s BRENDA WINIARSKI As we all know, calculating the phe & protein in your food is a pain. At first, it’s relatively easy: look up a food, weigh or measure it, and calculate the phe. But once you start cooking–for a child with PKU or for yourself —…


Recounting PKU: A Living History Project for Adults with PKU

PKU News is pleased to announce the founding of RECOUNTING PKU, a living history project for adults with PKU. We invite anyone 18 and older with PKU to join us and share their experiences—the good, the bad, and the ugly—of living with PKU. PKU is strongly associated with children for several reasons: newborn…


Brenda’s Guide to Low-Protein Easter Candy

Easter is around the corner.  The traditional Easter candy is not always suitable when you are on a low protein diet, so how do you make it special for your loved one?  A little toy and a book are a great place to start when filling the basket. Easter themed…


So Delicious Dairy Free Joins the Partnership for PKU!

We are pleased to announce that after several years of lobbying by PKU News and countless community members, So Delicious Dairy Free has joined the Partnership for PKU as a premier partner. What Does That Mean? So Delicious is in the process of providing PKU News with the amino-acid-verified phe and protein values for its entire…