News

PKU News Announces COVID CARE Grant Program

PKU News is pleased to announce a direct-support grant fund for those managing an IEM on a low-protein diet. PKU News, How Much Phe, and Cook for Love realize that the COVID-19 pandemic has had a debilitating impact on many families in our community. We are here to help with…

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NBS Survey from Expecting Health & The Genetic Alliance

Expecting Health, a non-profit organization focused on engaging families and health professionals in pregnancy and newborn health is conducting a survey on family needs for newborn screening education. The goal of this survey is to learn about families’ needs and priorities around newborn screening information. The survey will inform development…