Unified to Support Metabolic Disorders (USMD-PKU)
Description:
Established in 2005, Unified to Support Metabolic Disorders (USMD-PKU) is the
realization of parents whose children inspired them to create a non-profit
organization to help enrich the lives of individuals living with PKU and Allied
Disorders. The organization is made up of a completely voluntary work-force
that began in South Texas and is spreading across America. The organization has
local volunteers in Missouri, Florida, Tennessee, Texas, and more to come (see
our website for updates)! Our goal is to create a unified community to do more
for individuals with these disorders by working together!
We provide the following Services (updates on www.usmd-pku.org):
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New Parents of children affected by these disorders - We have been where
you are today! Please contact us so we can support you and your family with
information.
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Ongoing Support for Individuals and Families - We work with local
volunteers (like you) to provide support via social and other activities to
your community.
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Low Income Assistance - We work with our sponsors to provide support for
low-income families.
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Federal Legislation Advocacy - Join our efforts to ensure that all
disorders receive insurance coverage for their medically necessary treatments.
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PKU Research Fundraising - With additional PKU Research, better
treatments are around the bend and together we can help find them more quickly!
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Unifying Across America - We want to work with you to make things happen
in your area!
Our Contact Info:
Unified to Support Metabolic Disorders, Inc
PO Box 8051
The Woodlands, TX 77387
Email: usmd.info@gmail.com
Website: www.usmd-pku.org
Last update: May 2007
National PKU News: www.pkunews.org
E-mail: schuett@pkunews.org
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